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For Carmen and the 400 more: a future without Rasmussen Encephalitis

We are building the largest bio-repository ever created for Rasmussen’s Encephalitis, with nearly 200 patient samples.

Collected

72.805€

Goal

150.000€

Donations

168

Left

76 days

49%
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Category

Investigación científica Enfermedad mental Salud Enfermedades raras

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Published: 27 Jan 2025

Carmen, a 29-year-old from Barcelona, is one of over 400 people battling #RasmussenEncephalitis (RE)—one of the rarest diseases in the world: only 2.4 out of every 10 million people are affected. Its cause remains unknown, and it leads the immune system to attack one hemisphere of the brain, resulting in significant brain damage.

At #REsolve, we are committed to changing this reality by building the largest bio-repository ever dedicated to RE research, where each sample costs approximately €25,000. Unfortunately, there isn’t enough data to find a cure, so we will share all information fully and publicly. International professionals are collaborating to better understand the disease and accelerate the development of a definitive treatment.

Your contribution will go directly toward funding the acquisition and analysis of these vital samples. The sooner we gather more data, the closer we’ll be to a cure. #WeAreAllInThisTogether in this fight, and every donation makes a difference for Carmen and others affected by #RasmussenEncephalitis.

Join us and help put an end to this rare disease! #Carmen #BioRepository #REResearch #RECure #DonationForLife

The REsolve Project is dedicated to transforming the landscape of Rasmussen encephalitis research, treatment, and patient care. Our mission is to unite leading scientific minds, medical experts, and patient communities to accelerate groundbreaking discoveries and innovative therapies. Through collaboration, advocacy, and cutting-edge research, we strive to bring hope, improve outcomes, and ultimately redefine what’s possible for those affected by this rare neurological disorder. 

Donators (169)

Georgina Recoder olle

20€

4 hours ago

Anonymous

Hidden donation

11 hours ago

xavi

10€

20 hours ago

Maria

15€

21 hours ago

Anonymous

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23 hours ago

Anonymous

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23 hours ago

Albert

5€

23 hours ago

Anonymous

5€

One day ago

Clara

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Anna

5€

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Xavier Pujol

5€

One day ago

Anonymous

5€

One day ago

Anonymous

Hidden donation

One day ago

Joana

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One day ago

Laura

6€

One day ago

Anonymous

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One day ago

Laura

5€

One day ago

Anna

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Alba

8€

One day ago

Gemma Vicens Novell

5€

One day ago

Anonymous

5€

One day ago

Daniel

5€

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Anonymous

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Paula

35€

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Laura C

5€

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Maider

5€

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Hawa Sow

5€

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Marçal

5€

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Guillem

50€

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Guillem Plaja

5€

One day ago

Verónica

5€

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Pilar

10€

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Jous

5€

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Marti

Hidden donation

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Laia

5€

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Esther

10€

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Maria Martínez

5€

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Senyor X

5€

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Anna

5€

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Sam

5€

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Berta

5€

2 days ago

Aida

15€

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Jordi

10€

2 days ago

David costa

20€

2 days ago

marina

15€

2 days ago

Juan

5€

2 days ago

Cristina

5€

2 days ago

Aniol

5€

2 days ago

Anonymous

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2 days ago

Anonymous

5€

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Comments (26)

Maria

21 hours ago

Animo!

Joana

One day ago

Gracias Half por ser bonitas personas y promover bonitas causas

Laia

One day ago

Laia AB

Aniol

2 days ago

Des de Half Runners <3

Bunyespo S.L.

10 days ago

Enhorabona! Molta sort i endavant

María

61 days ago

Ojalá se consiga,acaban de diagnósticar a mi sobrina de 6 años y la verdad que estamos perdidos.gracias por la iniciativa

CITYCAT 94 S.L.

77 days ago

Carmen, te felicitamos por tu perseverancia y fuerza de voluntad y esperamos llegues pronto al objetivo.

Gracias, muchas gracias. Entre todos estoy segura que conseguiremos llegar al objetivo y tener un tratamiento y una cura para esta enfermedad!! Carmen.

ASOCIACIÓN RESOLVE PROJECT

112 days ago

Total donaciones realizadas a Resolve Project

Maria Aida

121 days ago

Ánimo desde Asturias

Gracias de corazón, Maria Aida. Entre todos estoy segura que conseguiremos llegar al objetivo y tener un tratamiento y una cura para esta enfermedad!! Carmen.

Aida

122 days ago

Mi niña de 8 años también tiene Rasmussen. Nosotros estamos con el Niño Jesús en Madrid. Ojalá sirva para avanzar en la búsqueda de un tratamiento efectivo

Gracias de corazón, Aida. Entre todos estoy segura que conseguiremos llegar al objetivo y tener un tratamiento y una cura para esta enfermedad!!

Guillermo

132 days ago

Campeona!! 💪

Emilio

132 days ago

Mucho ánimo, y espero que esto pueda ayudar

Esther

133 days ago

You go girl! Embajadora! 🙌❤️🙏🏻

Gracias de corazón, Esther, por tu donación. Entre todos estoy segura que conseguiremos llegar al objetivo y tener un tratamiento y una cura para esta enfermedad!! Carmen.

Chloe Elizabeth Marie Celine

133 days ago

Estamos contigo!❤️

Iago

133 days ago

Vamos!

Mireia

133 days ago

Eres inspiración

Yolanda

133 days ago

Ànims Carmen!!! Estàs fent una gran labor

Blanca

157 days ago

Estamos contigo, Carmen, lo vamos a conseguir!!!! Gran abrazo